For families living with a rare diagnosis

When there is no template, build your own record

Rare and undiagnosed conditions do not fit a standard form. LumaCare lets you define the events, measurements and routines that matter - and share them with every helper.

The LumaCare care dashboard
Sound familiar?

What makes it hard

The condition does not fit an app's form

The things you track may not have a name yet. A fixed template becomes a workaround.

Every specialist asks for something different

One wants seizure counts, another wants feeding volumes, a third wants sleep. The record has to be able to change.

The knowledge lives with one parent

If the person who remembers everything is ill, the care stops being the same.

You become the expert the system does not have

You explain the condition to every new doctor, teacher and caseworker - and the knowledge is never written down in one place.

A better way

Three questions LumaCare answers every day

Instead of group chats and a notebook, the answers are already in one shared place.

Did today's measurement get recorded?

Build event types with numbers, text, dropdowns or photos - the fields your condition actually needs, not a fixed form.

Feeding Today · 12:30

120 ml, tolerated well. No discomfort afterwards.

Logged by helper

What did the specialist ask for last time?

Notes from the appointment are written down once, so the next report answers the same question - without reconstructing the conversation.

Appointment summary

Genetics wants feeding volumes and sleep for the last four weeks. Neurology wants the seizure diary. Both can be built from the same log.

Last visit · 12 Oct Shared with the family

How do we explain the pattern to a new doctor?

Choose a period and build one report across event types, medication and notes - the whole story in one document you can hand over.

Care summary Last 30 days
36Events
4Specialists
Download PDF

Frequently asked questions

Can we define our own event types?

Yes. Build event types with text, numbers, dropdowns, photos and more - whatever your family actually needs to record. No fixed diagnosis template.

Can we bring records from another system?

Yes. Upload an Excel or CSV file or an export from another system, and LumaCare suggests how it fits your event types with a preview before anything is saved.

Can we keep the care guides for helpers?

Yes. Write step-by-step guides for the routines that matter, and give each helper exactly the access they need - and nothing more.

Is my loved one's data safe?

LumaCare is built with privacy by design. All data is encrypted, stored in EU data centres, and fully GDPR compliant - including Article 9 protections for health data.

What does it cost?

The Starter plan is free and needs no credit card. The Family and Premium plans can be tried free for 14 days - see the prices below.

Pricing

Simple pricing that grows with your family

Start free - try every Family and Premium feature free for 14 days.

Starter
Free
Getting started with coordinated care
Start for free today
Family
€7.99 / month
incl. VAT
Full care coordination for growing families
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Build the record your family needs

Start free and shape LumaCare around your diagnosis, not the other way round.

Start for free today

Start free - try every Family and Premium feature free for 14 days.